Influencer Hannah Campbell is mourning the loss of her 10-month-old daughter, Elliana Rose.
“Our sweet girl Elliana Rose lost her battle last night,” Campbell shared via TikTok on Monday, April 7. “She passed peacefully last night, wrapped in love. I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us.”
Elliana had suffered from epidermolysis bullosa, known as EB, a rare genetic disorder that affects the skin as well as the mucous membranes that line the mouth, throat and stomach, among other internal areas, according to Mayo Clinic. EB causes painful blistering. Babies born with the condition are called “butterfly children” because their skin is so delicate.
Campbell used her TikTok as a platform to share the highs and lows of her short time with Elliana, and raise awareness about her child’s struggle to live normally. She posted videos of the little one bonding with her older sister, Ember, celebrating her 6-month birthday, enjoying the snow and watching fireworks explode over Disney World’s Cinderella Castle. (Campbell and her husband, Jacob, share Elliana and Ember, a toddler.)
Recently, Elliana’s health had taken a turn for the worse. In late March, Campbell shared a heartbreaking clip of her baby drinking from a bottle while struggling to keep her eyes closed.
“Ellie’s body is slowing down, and we’re staying by her side, giving her all our love,” she said at the time.
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This past weekend, she shared a video of the baby sleeping in a bouncer.
“Ellie is still with us, but her body is tired,” Campbell wrote in an update. “She hasn’t opened her eyes, eaten, and can hardly cry. We’re holding her close and loving her through every breath.”
Following Elliana’s diagnosis in 2024, “her family made the decision to leave their home in Virgina and relocate to their hometown in Maine,” according to a donation page on the EB Research Partnership website. “This move was made in order to be closer to their families and to the specialized medical care available in Massachusetts. This fundraiser is being organized with the aim of providing support to Elliana and other babies facing similar health conditions.”
The message noted, “Tragically, with this diagnosis, it is unlikely that Elliana will live beyond her first year.”
